Kidney Patient Advisory Council (KPAC)
The National Forum of ESRD Networks recognizes the central role of patients in its mission to promote optimal dialysis and transplant care across the United States. the Kidney Patient Advisory Council (KPAC) provides essential feedback and input into the activities and operation of the Forum. The Forum needs the experiences and perspective of the patient members of the KPAC in order to fully understand the needs and challenges of the renal community. The patient perspective is also critical in the development of effective quality improvement programs, technical assistance tools, patient educational materials, and other Network activities.
The primary roles of the KPAC are:
- To inform the Forum and its Board about the needs of patients
- To facilitate patient centered care
- To provide input into Forum activities
The KPAC's mission is to support and advocate on behalf of all ESRD patients and to improve the standard of care to patients with renal disease, through education and the collection, analysis, and dissemination of data and information.
| Network | KPAC Representative(s) | |
|---|---|---|
| Network 1 | Sherrie Shively | |
| Network 2 | Dawn Edwards - KPAC Co-Chair | |
| Lisa Baxter | ||
| Network 3 | William Senior | |
| Anthony Abbate | ||
| Stephanie Dixon | ||
| Network 4 | Timmy Nelson | |
| Network 5 | Johnny Jones | |
| Patrick O. Gee, Sr., PhD | ||
| Network 6 | VACANT | |
| Network 7 | Janice Starling | |
| Network 8 | Darrell Guyton | |
| Network 9 | Evan Coaker | |
| Network 10 | Candria Denzmore | |
| Network 11 | Jeff Nelson | |
| Mary Baliker - KPAC Co-Chair | ||
| Network 12 | VACANT | |
| Network 13 | VACANT | |
| Network 14 | Precious McCowan, PhD | |
| Abby Ruiz | ||
| Network 15 | Christina Gilchrist | |
| Michael Gilchrist | ||
| Network 16 | Lisa Custer | |
| Bob Crabtree | ||
| Network 17 | Doris Lew | |
| Network 18 | Wendy Skinner | |
| EDAC Network Rep | Sue Caponi, MBA, RN, BSN, CPHQ | |
| PSD Network Rep | Yessi Cubillo, BA | |
| PSD Network Rep | Lisa Hall, MSSW, LICSW |
Donate
The National Forum of ESRD Networks, Inc. is a registered 501(c)(3) non-profit organization #13-3246354. Your donation is tax deductible to the extent allowable by law. No goods or services will be provided by the Forum in return or consideration for this contribution. Donations can also be mailed to the Forum Office at PO Box 70623, Henrico, VA 23255.
Donate nowWhat's new on the Forum website?
October KPAC Newsletter Now Available
Read It Today!
The October issue of Your Voice, Your Health is now available. This issue features an article from KPAC member Patrick Gee, PhD, about mental health awareness. Read this and past issues of Your Voice, Your Health here.
Forum Releases New SHEP Initiatives
Check out these best practices!
The Forum is pleased to announce the release of TWO new Sharing Highly Effective Practices (SHEP): an emergency app for patients and a patient-led infection control audit project. Read more and submit your own SHEP here.
50 Years of the Forum!
50 Years of the Forum!
Forum members have published an article in CJASN providing an overview of the Forum's role in the ESRD Network Program.
Forum Member Presents on Transitions of Care
Watch and Learn!
Forum Board member David Henner, DO, presented on the Transitions of Care Toolkit at the 2025 National Kidney Foundation Spring Clinical Meetings. View the slides and video.
Forum Releases CMS Medication Bundle Resource
The Forum has developed a reference table for dialysis-related medications and their status with the CMS medication bundle.
Download it here.
KPAC Member Bios Now Available!
Want to know more about the Forum's KPAC members?
Read their bio statements here. If you're looking for a patient advocate to speak at your event, it's a great way to find the perfect match.
