Advocating for the organizations that monitor the quality of chronic kidney disease, dialysis and kidney transplant care in the USA.

Dialysis Patient Grievance Toolkit

This Toolkit was developed BY patients FOR patients to help patients as they work through the Grievance System.

Dialysis Patient Grievance Toolkit - English

Dialysis Patient Grievance Toolkit - Spanish

Additional Resources - Grievance Toolkit

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The National Forum of ESRD Networks, Inc. is a registered 501(c)(3) non-profit organization #13-3246354. Your donation is tax deductible to the extent allowable by law. No goods or services will be provided by the Forum in return or consideration for this contribution. Donations can also be mailed to the Forum Office at PO Box 70623, Henrico, VA 23255.

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What's new on the Forum website?

April is Donate Life Month!

KPAC Develops Donate Life Month Flyers for Patients

April is Donate Life Month! The Forum of ESRD Networks’ Kidney Patient Advisory Council (KPAC) has developed some helpful flyers, one for each week in April, for you to display in your facility.

Forum Releases CMS Medication Bundle Resource

The Forum has developed a reference table for dialysis-related medications and their status with the CMS medication bundle.

Download it here.

March is Kidney Month!

KPAC Develops Kidney Month Flyers for Patients

March is Kidney Month! The Forum of ESRD Networks’ Kidney Patient Advisory Council (KPAC) has developed some helpful flyers, one for each week in March, for you to display in your facility.

KPAC Member Bios Now Available!

Want to know more about the Forum's KPAC members?

Read their bio statements here. If you're looking for a patient advocate to speak at your event, it's a great way to find the perfect match.

KPAC Develops Vaccination Poster

The Forum's Kidney Patient Advisory Council recently released a poster promoting vaccination among dialysis and transplant patients.

MAC Releases Updated Home Dialysis Toolkit

This toolkit for health providers and practitioners is a reference tool that gives information about overcoming barriers to starting or growing a home dialysis program.

NEW: Home Dialysis Toolkit [2023]

Updated to include:

New sections to address AAKH and CfC updates
Emergency management of home dialysis patients
Impact of ESCOs, ETC Model, Voluntary Models on home therapies
Enhanced modality education: transitional care and self care
Emerging Technology and the impact and benefits to home therapies
Addressing Disparities and Access to Care
Home therapy options in the LTC/nursing home setting
KPAC Section: Empowering patients and care partners to be successful at home

Read the press release here.

Dialysis Patient Grievance Toolkit