Kidney Patient Advisory Council (KPAC)
The National Forum of ESRD Networks recognizes the central role of patients in its mission to promote optimal dialysis and transplant care across the United States. the Kidney Patient Advisory Council (KPAC) provides essential feedback and input into the activities and operation of the Forum. The Forum needs the experiences and perspective of the patient members of the KPAC in order to fully understand the needs and challenges of the renal community. The patient perspective is also critical in the development of effective quality improvement programs, technical assistance tools, patient educational materials, and other Network activities.
The primary roles of the KPAC are:
- To inform the Forum and its Board about the needs of patients
- To facilitate patient centered care
- To provide input into Forum activities
The KPAC's mission is to support and advocate on behalf of all ESRD patients and to improve the standard of care to patients with renal disease, through education and the collection, analysis, and dissemination of data and information.
| Network | KPAC Representative(s) | |
|---|---|---|
| Network 1 | Sherrie Shively | |
| Network 2 | Dawn Edwards - KPAC Co-Chair | |
| Lisa Baxter | ||
| Network 3 | William Senior | |
| Anthony Abbate | ||
| Stephanie Dixon | ||
| Network 4 | Timmy Nelson | |
| Network 5 | Johnny Jones | |
| Patrick O. Gee, Sr., PhD | ||
| Network 6 | VACANT | |
| Network 7 | Janice Starling | |
| Network 8 | VACANT | |
| Network 9 | Evan Coaker | |
| Network 10 | Candria Denzmore | |
| Network 11 | Jeff Nelson | |
| Mary Baliker - KPAC Co-Chair | ||
| Network 12 | Shane Blanchard | |
| Anita Kucera | ||
| Network 13 | VACANT | |
| Network 14 | Precious McCowan, PhD | |
| Abby Ruiz | ||
| Network 15 | Christina Gilchrist | |
| Michael Gilchrist | ||
| Network 16 | Lisa Custer | |
| Bob Crabtree | ||
| Network 17 | Doris Lew | |
| Network 18 | Wendy Skinner | |
| EDAC Network Rep | Sue Caponi, MBA, RN, BSN, CPHQ | |
| PSD Network Rep | Yessi Cubillo, BA | |
| PSD Network Rep | Lisa Hall, MSSW, LICSW |
Donate
The National Forum of ESRD Networks, Inc. is a registered 501(c)(3) non-profit organization #13-3246354. Your donation is tax deductible to the extent allowable by law. No goods or services will be provided by the Forum in return or consideration for this contribution. Donations can also be mailed to the Forum Office at PO Box 70623, Henrico, VA 23255.
Donate nowWhat's new on the Forum website?
April is Donate Life Month!
KPAC Develops Donate Life Month Flyers for Patients
April is Donate Life Month! The Forum of ESRD Networks’ Kidney Patient Advisory Council (KPAC) has developed some helpful flyers, one for each week in April, for you to display in your facility.
Forum Releases CMS Medication Bundle Resource
The Forum has developed a reference table for dialysis-related medications and their status with the CMS medication bundle.
Download it here.
March is Kidney Month!
KPAC Develops Kidney Month Flyers for Patients
March is Kidney Month! The Forum of ESRD Networks’ Kidney Patient Advisory Council (KPAC) has developed some helpful flyers, one for each week in March, for you to display in your facility.
KPAC Member Bios Now Available!
Want to know more about the Forum's KPAC members?
Read their bio statements here. If you're looking for a patient advocate to speak at your event, it's a great way to find the perfect match.
KPAC Develops Vaccination Poster
The Forum's Kidney Patient Advisory Council recently released a poster promoting vaccination among dialysis and transplant patients.
Read more here.
MAC Releases Updated Home Dialysis Toolkit
This toolkit for health providers and practitioners is a reference tool that gives information about overcoming barriers to starting or growing a home dialysis program.
NEW: Home Dialysis Toolkit [2023]
Updated to include:
- New sections to address AAKH and CfC updates
- Emergency management of home dialysis patients
- Impact of ESCOs, ETC Model, Voluntary Models on home therapies
- Enhanced modality education: transitional care and self care
- Emerging Technology and the impact and benefits to home therapies
- Addressing Disparities and Access to Care
- Home therapy options in the LTC/nursing home setting
- KPAC Section: Empowering patients and care partners to be successful at home
Read the press release here.
Latest Forum Matters Now Available
The latest Forum Matters Newsletter is now available on the website!
Review current and past issues of Forum Matters here.
MAC Updates Transitions of Care Toolkit
This Toolkit for health providers and practitioners is a reference tool that gives information about challenges in transitions of care and suggestions to help create solutions.
MAC Transitions of Care Toolkit (March 2022)
COVID-19 Vaccination Flyer for Dialysis Patients
Please share this flyer with your dialysis patients
Resources & Links for Kidney Patients
Learn about the New Transplant Toolkit for Patients
This 12-minute video provides an overview of the Toolkit